World MS Day

818732A4-17E2-4750-843D-EBDE9579C852It’s been a funny old month of headaches, fatigue, bugs, recovery time, (lovely) half term pyjama days and not as much of the usual skipping around my busy routine (I never actually skip, I don’t think my brain allows for skipping anymore). 

Everything has been so upside down that I even forgot to acknowledge World MS Day on Wednesday 30th May. This years theme is research and #bringinguscloser. The idea is to raise awareness and understanding of the disease which will hopefully bring us closer to finding a cure for this horrible disease. I don’t think I’ll ever fully understand why it happens, but this explanation is good if you want to understand more.

And in the interest of getting my skipping back, I’m starting my day with a list. A big, juicy, organised list of all the things I hope to achieve (but probably won’t ever get to the end of).

Sometimes I almost forget I have MS.

Not this month.

 

 

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I know I’ll pay for this but I’m doing it anyway…

F0F45C87-E571-4EB3-BEEB-3A2C74EE9DF6Friday evening: Gym (lots of resistance training which weirdly undoes my MS’y legness).

Saturday morning: Teaching yoga all morning (Yoga is my all round magic MS defeating tool).

Saturday afternoon : Lots of digging on the allotment. (Outside time keeps me (sort of) sane).

Sunday and Monday: Could barely move.

At the fairly decent age of 42 (and after living with MS for over ten years),  I doubt I’ll ever learn 🙄

#keepmovingevenifithurtsabit

 

 

 

Happy Valentines Day…

Some days just go really well don’t they.

Life seems easier and everything flows beautifully. It rains but you manage to get parked right by the entrance of wherever you are going. You have to go shopping for gifts and actually spend time choosing rather than throwing random things in the trolley. And you have your 4 and 7 year old with you. But on these days they are so well behaved that you feel like you’ve finally cracked the code. (It’s bribery in case anyone is still wondering).

Then you go for your monthly blood tests at the hospital. No waiting around. Kids are happy and calm. You nervously ask if they have received your latest MRI results yet, not really knowing whether you want to hear what they have to say at this very time, but it’s too late. She’s checking.

You get told that the treatment you went through (Lemtrada/Alemtuzumab) was worth every drop of worry and difficulty. Your most recent MRI shows no change, which doesn’t sound that exciting, but for someone with relapsing-remitting MS, it really is. No change means no current disease activity which means no further damage going on without you knowing about it.

Phew. Phew. And a bit more phew.

Happy Valentine’s Day everyone.

If your Valentine’s hasn’t been so positive, you’re due an easy one soon. I promise.

Lynne x

 

October Love

13F22A0B-DA2F-4D75-9C57-DF043B29F349.jpegI love October.

Cold enough for a cheeky (and possibly unnecessary) woolly hat, but warm enough to stand in playgrounds long enough for your little beasts to get a decent bit of exercise without you sacrificing a small part of your body to the God of Cold.

Most importantly it’s the month that (very almost seven years ago) I became an MS-y mummy.

Which was when I realised how important it is at this time of the year that I hike up my self-care routine. If I don’t,  I risk a huge dip in energy, an increase in headaches and muscle tension (my body tenses up at the mere hint of a temperature drop) and I am on the edge of feeling crappy for most of the winter. Add catching a cold into the mix and I am screwed until spring.

It’s time to really look after myself.

So I’m starting with some yummy recipes. (I’m obsessed with food, so it’s always my first port of call).

Warm, sweet, anti-inflammatory, unprocessed, green and homemade are the words that describe my most needed food at the moment.

So here’s one I made earlier:

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Spinach, parsnip, leek, carrot, lentils and potato soup. Peel, chop, bung in pan, cover with water and add some stock. Black pepper is a lovely addition as it warms your system. Cook till soft then blend till smooth.

Cheap, lush, warm and homemade. Goes so well with a fat beetroot and hummus sandwich.

Stay warm Peeps 😍

 

 

I’m much better at Yoga than I am at selfies

Can someone please teach me how to look a bit less awful on social media?

Cross eyed, bag eyed, one eye bigger than the other, one tooth longer than the other. Don’t suppose it matters really.

The hair. I know. Storm Brian is to blame.

That’s not what bothers me. What bothers me is the weird not-quite-confident-enough-to-pout-or-do-the-side-angle-selfie-face (I’ve tried it. I look and feel ridiculous).

I look like a mum trying to do a selfie. Oh. I am a mum trying to do a selfie. My poor kids are going to be so embarassed in a few years time.

Anyway the point of this blog is NOT to analyse a block of pretty crap pictures of me looking a lot older than I had hoped I do.

It’s about me trying stuff that’s not that comfortable and easy for me.

Like the yoga class I went to this morning.

It felt amazing to be practising back where my yoga started. In an Iyengar yoga class that felt like a real challenge. And after ten years of MS progression, the challenges are different.

The teacher had no idea that I am a teacher. He noticed when I needed help and I accepted the help as if I knew nothing. Which at certain points, was true.

*You never stop learning yoga. Every class you teach, attend or practise at home uncovers something new. That’s one of the many things I love about it.

Some days I feel that it would be easier to stick to what I know I can manage. Fear of worsening my symptoms or bringing on fatigue often holds me back. But on a sunny, well-rested Sunday like today, I felt strong enough to ignore my MS. And I am so pleased I did.

I’m nearly forty-two. This morning when I was upside down feeling strong and focused, I felt twenty-two.

Bring. It. On.

Thanks lovely yoga centre. I will most certainly be back for more of the magic.

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A Perfect View

C34E30EC-7764-44E5-9A46-367A2771FD02Two years ago I stood on this hill behind my little family thinking how perfect the day was. Sunny, warm and calm on the outside. A bag of nerves on my inside.

It was the perfect “last day” before filling my body with enough toxins to wipe out a large part of my immune system.

“Shit I hope this treatment works and doesn’t make things worse” I remember thinking.

So far so good.

Phew.